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Dear Family and Friends, Not so good news. Day before yesterday Margreet suffered what appears to have been an epileptic seizure. It was a strange one. There were not the typical convulsions but just a stiffening of the body with her head and eyes turned all the way to the left. It happened just before she was to eat her lunch. When the doctor came after my phone call, he first thought that it may be bleeding from the tumor, due to the suddenness of the event. He gave her some shots with muscle relaxant so she wouldn't be sore when she comes out of it (if it was an epileptic fit) and some extra dexametazone to relieve the swelling around the tumor. Her pupils did not respond to a light shoned into them, and was completilly unresponsive to any of our calls. When I talked to Marcia, who was away on visit in Sneek (a town in the Friesland province) and descrived what I'd seen and what the doctor had said, she thought she was in a coma and that would have been the worst. The damage from bleeding in the brain is usually permanent. However, the doctor made sure that I understood that these were just guesses, since there is no way of knowing for sure what was happening in there. The question arose as to whether she should stay here in the 'huisje' or should she be taken to the hospital. I know she doesn't like hospitals, and they would not be able to do anything to help her anyway, so we've kept her here, which was a good decision as I'll explain below. The doctor contacted the nursing organization that's been taking care of her and they started preparations to have a nurse at night, so I'd be able to sleep. A hopital bed was ordered and would come in the next day. We started thinking about where to put all the stuff the the little house, our regular beds, dresser, table, etc. so they would have room to work around the bed. The doctor and his assistant left and said that they'd be back later in the afternoon. I stayed in the huisje to keep an eye on her. A couple of hours later, two friends of her arrived for a visit. She'd invited them during the morning to come for some coffee. That's how unexpected this thing was. I'd forgotten to cancel their visit. They stayed for a little while. During that time Margreet started to become conscious. A little bit. In and out of consciousness. She complained of a head ache and neck pain, during her semi awake periods. This was good news! The doctor had said that the next 6 to 8 hours would be crusial in telling us what was happening inside her. So it started looking, to me, more like an epileptic fit than a hemorrage. By the time the doctor came back she was "fully" conscious. She'd been even able to go to the "WC stoel" (as Arianna calls it, "WC chair") with my help. So later on we cancelled the night nurse and next day the hospital bed. On Tuesday, yesterday, she called her friends again and they came back on the afternoon. This time they had a good time chatting, drinking tea, eating coockies, telling stories, commenting how good she looked now, and so forth. She's told me that she could hear everything during the epileptic fit (it seems that that is what it was. Her present condition does not fit a hemorrage pattern) She recognized the voices of the people around her and was very comforted to have familiar voices around her, which wouldn't have been the case if she was in the hopital. She repeated many of the questions we'd been asking her to see if she was concious. She made fun of some of the things we'd said. She also mentioned that she'd become scared when she heard the doctor say that it could be a hemorrage in the brain, so now we know not to talk about her condition when we are within earshot. We also know that we can talk to her when she's in this condition, we just won't get a response. At several points during the insident, she'd been making noices with her mouth. I called it 'talking in toungues'. She said that she was trying to tell us somethings, but the words just wouldn't come out. She said that this was something like a small 'preview' of what death may be like, "and it's not that bad" she said. Her oncologist has mentioned that the symptoms for this type of tumor are that she will become more and more sleepy until at some point she just won't wake up and she will be in a coma for some time. This morning she had two similar insidents, only much less severe. She came out of them in a few minutes. The doctor gave her a shot of valeum to relax her muscles, so she was sleepy most of the day. Not a very comforting sight for me, I must say. "We should have been paying more attention to Goofy" she said today. "Goofy" is the name she gave to the tumor part that is growing close to the portion of the brain that causes epileptic fits. She and Marcia had a little crying session while I was at work. She's afraid that Marcia may not be taking this very well. But I think she is taking it well. She just melts during those special moments. When I came back from work she asked me if she was to come back as a bird, what kind of bird should she be? She doesn't want to come back as a dove or a butterfly. I suggested maybe a swan. "Yeah, they are very elegant" she said "but I think I'd come back as a hummingbird." She'd been remembering the hummingbirds in Catalina island. They are beautiful and feisty, always bitching about their "feeder rights" around the house. "I could come back and still bitch at you" she said. And I can believe that, if I didn't keep the feeder full all the time. It reminds me that the symbol for the god to which the Aztecs dedicated all their human sacrifices was a hummingbird, so their courage and feistiness has been recognized in previous cultures... hmmm, yeah, that would be a good bird for her. (Next day, Thursday) Today she's been weak and disoriented. Her head and eyes pull to the left from time to time. When she's laying in bed that's toward the corner where there's a bureau with a small basket full with papers, magazines and toys for Arianna. She says that she trying to figure out how she's going to clean it, but I know better. We are waiting for some new medicine against epilepsy to see if that will help her any. Should be here tomorrow. The dosage of dexametasone is also being increased. I don't know if the chaparral tea did anything other that keep her spirit up, which in itself would be a great benefit. She's still drinking it though. She still wants to reach her original goal, which was to be able to celebrate her 60th birthday, which is coming on 15 September, less than a month. We're planning to have a tent in the backyard and have food catered by one of our friends. But she's added a new requirement. She wants to have a mariachi band playing. (Don't know where we'll find one around here... maybe she'll settle for a trio, I think that's more manageable... but these are details, we'll have something live and lively) Meanwhile I'm hoping that she'll be well enough to enjoy the festivities. It could go either way. She asked that you keep sending her light and prayers. She believes that that keeps her spirit high. Thanks. Bob |
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